David's Journey Fighting Febrile Infection Related Epilepsy Syndrome
To raise awareness of the rare syndrome F.I.R.E.S. and document David’s progress, a video blog will supplement the existing written blog occasionally. This aims to showcase changes for medical professionals and family, while recording medication effects. Despite ongoing challenges, doctors find David’s progress remarkable with no signs of brain damage.
The family recently returned from a relaxing road trip to Texas, Louisiana, and Siesta Key, Florida, which helped them temporarily escape challenges with David’s F.I.R.E.S. condition. After vacation, they plan to continue adjusting David’s medication and focus on improving his reading and writing skills, hoping he feels ready for second grade by summer’s end.
The blog update details the family’s ongoing journey with David’s epilepsy and behavioral challenges following a switch to a new school. Despite medication side effects and multiple hospital visits, progress has been seen with therapy sessions and a gradual medication adjustment. The family remains hopeful for healing and balance in David’s treatment.
David Fighting F.I.R.E.S.