by Desirae January 26, 2021 8 Celebrating 4 Years of FIRES Celebrating. That’s a word you don’t often think of when it comes to living with a chronic rare disease. LeadingContinue Reading
by Desirae November 3, 2020 8 November is Epilepsy Awareness Month In honor of Epilepsy Awareness Month, I think it is only right to give you all an inside look intoContinue Reading
by Desirae March 5, 2020 1 March 5, 2020 Update A few weeks ago David turn 10! Funny story about David’s birthday: He was born on February 13th, but atContinue Reading