January 2025 Update
The author discusses recent updates regarding David’s medication changes, particularly concerns about brain atrophy linked to long-term Depakote use. Although David experienced excessive drooling and behavioral issues, a reduction in Depakote dosage led to improvements. The transition from Zonisamide, which negatively affected David’s appetite, to Xcopri is noted, with no significant side effects thus far. The author expresses anxiety over medication withdrawal experiences and hopes for better support systems for families dealing with similar challenges in managing complex medical conditions.
David Fighting F.I.R.E.S. 