Withdrawals
Pharmaceuticals. They sure help when you need them to, but man- getting off of that medication is just a horrible,Continue Reading
Tag: status epilepticus
Topic of Conversation
In recent months, the author has learned that her son, David, is a topic of gossip in her hometown’s church communities due to his appearance, which is affected by his medications for a rare syndrome. The author emphasizes her gratitude for David’s life and expresses her commitment to raising awareness about the condition. She urges community members to shift from gossip to support, encouraging them to reach out, pray, and help families facing struggles. The message highlights the importance of community and compassion.
4 Months Post VNS Surgery Update
David’s post-surgery updates reveal significant improvements. The family has successfully weaned him off Briviact, resulting in fewer and less severe seizures. Cognitive and behavioral enhancements are noted, with reduced reliance on other medications. David shows progress in learning and behavior, and they anticipate further improvements post-relocation to Jacksonville.
David Fighting F.I.R.E.S. 