David's Journey Fighting Febrile Infection Related Epilepsy Syndrome
The post reflects on the emotional journey of living with David’s chronic condition, FIRES, while acknowledging the pain of the past. Despite ongoing challenges, the family celebrates David’s resilience, growth, and the support of loved ones. The author emphasizes gratitude for life, recognizing each moment as a gift, especially as David turns 11.
The author shares their family’s journey with epilepsy, focusing on their son David’s rare diagnosis of FIRES. After multiple medications and surgeries, including VNS surgery, they detail the ongoing challenges, managing seizures, and the emotional toll on the family. They emphasize the importance of awareness and understanding for better support.
David recently celebrated his 10th birthday, with fun activities despite his ongoing challenges related to epilepsy. After a difficult period of medication adjustments and seizures, the family enjoyed a zoo outing. They are exploring options for a seizure dog for added safety and reflect on their journey over the past three years.
David Fighting F.I.R.E.S.