David's Journey Fighting Febrile Infection Related Epilepsy Syndrome
In 2019, David experienced significant improvements in his health after switching to Depakote and undergoing VNS surgery. He celebrated milestones like his 9th birthday and transitioned to public school. Despite challenges, including severe seizures and medication withdrawals, the family remained optimistic and grateful for his progress, hoping for continued advancements in 2020.
David’s post-surgery updates reveal significant improvements. The family has successfully weaned him off Briviact, resulting in fewer and less severe seizures. Cognitive and behavioral enhancements are noted, with reduced reliance on other medications. David shows progress in learning and behavior, and they anticipate further improvements post-relocation to Jacksonville.
David’s VNS surgery was successful with no complications, and he is recovering well. His “medicinal rages” have become less frequent and intense. Progress is evident as he reduces phenobarbital, experiencing no seizures. David resumes normal activities, preparing for a move soon, and the family appreciates ongoing support through this journey.
David Fighting F.I.R.E.S.