David's Journey Fighting Febrile Infection Related Epilepsy Syndrome
David recently celebrated his 10th birthday, with fun activities despite his ongoing challenges related to epilepsy. After a difficult period of medication adjustments and seizures, the family enjoyed a zoo outing. They are exploring options for a seizure dog for added safety and reflect on their journey over the past three years.
In 2019, David experienced significant improvements in his health after switching to Depakote and undergoing VNS surgery. He celebrated milestones like his 9th birthday and transitioned to public school. Despite challenges, including severe seizures and medication withdrawals, the family remained optimistic and grateful for his progress, hoping for continued advancements in 2020.
David’s post-surgery updates reveal significant improvements. The family has successfully weaned him off Briviact, resulting in fewer and less severe seizures. Cognitive and behavioral enhancements are noted, with reduced reliance on other medications. David shows progress in learning and behavior, and they anticipate further improvements post-relocation to Jacksonville.
David Fighting F.I.R.E.S.